1. In this scoping review, qualitative studies on amyotrophic lateral sclerosis (ALS) demonstrated a perceived benefit of psychology on outcomes for both patients and their caregivers.
2. Quantitative studies, however, have shown mixed results regarding the role of psychiatry on patient and caregiver outcomes.
Evidence Rating Level: 1 (excellent)
Amyotrophic lateral sclerosis (ALS) is a debilitating motor neuron disease (MND) that is often associated with significant psychological distress. Spirituality is an approach often used in palliative care to help patients suffering from terminal illnesses such as ALS. However, few studies have evaluated the role of psychiatry in ALS patients and their caregivers. Consequently, the aim of this study was to review the literature on the role of spirituality in ALS patients and their caregivers.
Of the 1208 identified records, 18 studies (n=387 patients; 214 ALS, 164 caregivers) from various databases from January 2006 to April 2022 were included. rice field. Studies were excluded if they assessed outcomes related to health professionals treating ALS or if they addressed only religion. This review was conducted using the Joanna Briggs Institute and her PRISMA guidelines. The primary outcome was the role of psychiatric or psychiatric interventions for ALS/MND patients and their caregivers.
Results showed that, in the qualitative literature, spirituality helps caregivers cope with and support new realities. For patients, spirituality has enabled them to embrace new interpretations of life and diagnoses that are more focused on gratitude and appreciation. was shown. Despite these results, the study was limited by excluding languages other than English, Spanish, Portuguese and French, which may have limited the comprehensiveness of the search. has provided an important tool for health professionals to better understand the role of spirituality in the context of ALS/MND patients and their caregivers.
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