Home Medicine Jefferson City-supported family worries son’s Pompe medication will not be covered

Jefferson City-supported family worries son’s Pompe medication will not be covered

by Universalwellnesssystems

during monday night city ​​council meetingwhen a new insurance plan was introduced and his family voted to take advantage of it, a concerned Ryan Dudenhoffer attended to find answers.

“My husband, Ryan, works for the city’s parks department,” said his wife, Megan Dudenhoffer.

“We normally have Anthem Blue Cross Blue Shield insurance, which is what the entire city uses for insurance. My husband was informed and went to the City Council meeting on Monday night. Something about Quantify was on the table.” Anyone with high-risk or high-cost drugs will be required to participate in the program. ”

amount is a specialty care program focused on high-touch therapies and biologics for members with rare and chronic conditions. The Dudenhoeffer family has a son named Grady who has a rare disease. Pompe.

Past treatments have cost up to $50,000, so Dudenhoefer worries that the new system will still not cover her and her son.

“He is on an expensive drug called Nexvidim. There is only one manufacturer. There is no generic version and it is not available at a cheaper price. My son has a glycogen storage disease. , I receive enzyme supplementation every other week, which destroys the muscles and causes muscle weakness throughout the body,” Dudenhoefer said.

Those concerns came after another attempt by the city’s human resources department and attorneys to change the family’s insurance.

In July, Mr. Dudenhoeffer was asked to voluntarily switch from his standard insurance, but claims he was given little information and learned that the company did not cover his son’s medications.

Meghan looked for answers before settling.

“I fought until I found someone who would guide me in the right direction to represent who I am for my son, who I am, who I am, and who I am. I reached out to someone who told me that my son’s medication would not actually be covered,” Dudenhoefer said.

After contacting several city council members, facebook post Created by Dudenhoeffer to raise awareness of this issue.

City Administrator Brian Crane later issued a statement sharing that the switch comes with the hope of preserving the city’s health care program.

“Currently, the City’s Health Trust Fund generates approximately $4.5 million annually. Unfortunately, this year’s projected bill is expected to reach $6.5 million, leaving us with a $2 million shortfall each year. “This gap represents an unsustainable financial situation that, if left unaddressed, will jeopardize the entire program,” Crane said in a statement.

He added that he is considering all options to accommodate all families supported by the program, prioritizing “both the health of our employees and the long-term sustainability of the city’s health insurance program.” He added that he has set a goal.

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